![MS International Federation](/img/default-banner.jpg)
- Видео 319
- Просмотров 1 034 376
MS International Federation
Добавлен 19 май 2009
The Multiple Sclerosis International Federation (MSIF) was established in 1967 as an international body linking the activities of national MS societies around the world.
Our vision is a World Without MS and our mission is to lead the global MS movement to improve the quality of life of people affected by MS and to support better understanding and treatment of MS by facilitating international cooperation between MS societies, the international research community and other stakeholders.
We work to achieve this through the following key priorities:
-International research
-Development of new and existing societies
-Exchange of information
-Advocacy
To find out more about MSIF or the World MS Day Campaign go to www.msif.org or www.worldmsday.org
Our vision is a World Without MS and our mission is to lead the global MS movement to improve the quality of life of people affected by MS and to support better understanding and treatment of MS by facilitating international cooperation between MS societies, the international research community and other stakeholders.
We work to achieve this through the following key priorities:
-International research
-Development of new and existing societies
-Exchange of information
-Advocacy
To find out more about MSIF or the World MS Day Campaign go to www.msif.org or www.worldmsday.org
Cykelnerven International 2024 - Recap Video
#tourdefrance #cycle #cycling
CYCLE TOUR DE FRANCE THE SAME TIME AS THE PROS!
Cykelnerven is Europe’s most unique and challenging charity cycling event. Each year seasoned riders from around the world take on over 400km of the toughest climbs from the Tour de France just a few weeks before the official race. It's the ride that every cyclist dreams of, but only the toughest can complete.
Your ride takes you over some of the steepest and most iconic mountains from the Tour. You get a dedicated support team, English speaking coaches, personalised briefs and you get to be part of a strong international Cykelnerven team.
More information: www.cykelnerveninternational.org/
CYCLE TOUR DE FRANCE THE SAME TIME AS THE PROS!
Cykelnerven is Europe’s most unique and challenging charity cycling event. Each year seasoned riders from around the world take on over 400km of the toughest climbs from the Tour de France just a few weeks before the official race. It's the ride that every cyclist dreams of, but only the toughest can complete.
Your ride takes you over some of the steepest and most iconic mountains from the Tour. You get a dedicated support team, English speaking coaches, personalised briefs and you get to be part of a strong international Cykelnerven team.
More information: www.cykelnerveninternational.org/
Просмотров: 352
Видео
Support Peer's Cykelnerven ride for MS
Просмотров 1283 месяца назад
I am retiring at the end of this year. But before I say goodbye, I wanted to take on one final challenge to fund MS research and improve quality of life for people with MS. Can I count on your support? Visit this link to support me: msintfederation.org/peer
The Progressive MS Alliance 2024 Progress Report
Просмотров 2385 месяцев назад
The Progressive MS Alliance 2024 Progress Report
Professor Klaus Schmierer on Cladribine use in MS
Просмотров 7278 месяцев назад
Professor Klaus Schmierer on Cladribine use in MS
MSIF's webpage and resources on access to MS Healthcare
Просмотров 8010 месяцев назад
In this video, Abdelfatah Ibrahim, MSIF's Head of Communications, Campaigns and Advocacy, runs through the information, tools and resources available on MSIF's website on access to healthcare.
Key steps to get started in using the WHO EML in your advocacy efforts
Просмотров 5710 месяцев назад
Nick Rijick, International Consultant at the MS International Federation (MSIF), speaks about making the most out of MS treatments being listed as essential by the World Health Organization (WHO)
WHO EML associated case study from the MS movement - Malaysia
Просмотров 7110 месяцев назад
In this Dr. Shanthi Viswanathan, Clinical neurologist at Hospital Kuala Lumpur in Malaysia, shares insights on the current DMTs available in Malaysia, the advocacy work carried out to improve access to DMTs including the importance of the National Essential Medicines List in Malaysia, its potential as an advocacy tool for improving access to MS treatments, and how it has helped to bring about p...
The impact of WHO EML listing on access to MS DMTs
Просмотров 10910 месяцев назад
In this presentation, Jennifer McDonell, Director of Information and Resources at MS Canada, answers the questions of What is the WHO Essential Medicines List and what it means that MS treatments have been listed?
WHO EML associated case study from the MS movement - New Zealand
Просмотров 5210 месяцев назад
Amanda Rose, National Manager at Multiple Sclerosis New Zealand, gives an update on the funding submissions made for cladribine, and how they are using WHO's EML recommendation to support their supplementary submission.
A video message from Peer Baneke announcing the WHO's decision
Просмотров 1 тыс.Год назад
Our CEO, Peer Baneke, has recorded a short video to share the great news of WHO's decision to add three MS treatments to its Essential Medicines List (EML). #MSTreatmentForAll #globalhealth #AccessToMedicines #multiplesclerosisawareness
Sharifah's story - Malaysia
Просмотров 377Год назад
Thirty-one year-old Sharifah Syed Munshe grew up in Iran but moved to Malaysia for university and never left. She works in the Department of Business Development at the gas and oil company, Petronas. She lives with her husband and daughter in a bustling suburb just 20 minutes from the city centre. Here she talks about her diagnosis, juggling treatment with planning a family, the complexities of...
Tarrbinder's story - Malaysia
Просмотров 558Год назад
Tarrbinder Singh was diagnosed with Primary Progressive MS in 2009, just as he began his first year of working as a qualified doctor. Despite not being on medication and his condition progressing significantly, he continued to work as a doctor right up until the Covid 19 pandemic. Here he talks about his pride in his home and career, and about how he became a “self-made man” after a traumatic c...
National Essential Medicine List in Malaysia
Просмотров 284Год назад
National Essential Medicine List in Malaysia
Progressive MS Alliance Announces New Global Research Initiative on Well-Being #shorts
Просмотров 185Год назад
Progressive MS Alliance Announces New Global Research Initiative on Well-Being #shorts
MSIF application to the World Health Organization Essential Medicine List - Nick Rijke
Просмотров 170Год назад
MSIF application to the World Health Organization Essential Medicine List - Nick Rijke
This was informative but emotionless; a read script.
Why don't you send a kiss to the people in Gaza they would really appreciate that and they need you
Υπάρχει μια καταπληκτική επίκουρος καθηγήτρια Νευρολογίας στο Αιγινητειο Νοσοκομείο η κ.Ανδρεαδου Ελισαβετ που με παρακολουθεί γιατί έχω σκληρηνση κατά πλάκας κ με έκανε κ περπάτησα γιατρέ ! Αν έρθετε Ελλάδα παρακαλώ πολύ επικοινωνήστε μαζί της είναι εξαίρετος επιστημον κ άνθρωπος
ليه مافيه عربي
I have progressive MS and have become a little cynical... Do you really think 'big pharma' will give you a drug to stop progressive MS?! Did you not hear how much money each organization got? Funding disappears if there's nothing to research... And ask each MS society around the world how much from each dollar donated actually goes toward research...only 5 cents per dollar goes towards R&D in Canada. And after 50+ yrs 'they're' no closer to knowing the cause of MS or having any effective long term treatment? But hey, can come up with a cv vaccine in six months that's going to save the world...🤔
2:30 pm 😅
Il mio commento e' sparito! Grazie YUOTUBE 😂
Thanks to all the speakers for a very enlightening discussion demonstrating that the ailment is receiving attention, it is very encouraging 🙏
Thank you for a very heartening and open discussion on what is being done. Could brain elasticity figure in any way to retrain parts of the brain that may not be affected where lesions have affected certain functions?
I have such pain tapping on my side or 6” goes through my body so bad I can’t antagonize to die, now I have no place to live, I’m homeless .
Thank you for this information
Taking abugio for PPMS.
❤❤❤ Ok
Cheers
Damage control? Solutions. Drugs. Any injections? Tired of hearing stories!🤷♂️
Role of stem cell therapy in multiple sclerosis.
Role of inhibition of CD40L with Frexalimab in multiple sclerosis.
Thank you all.
thank you
I am enjoying listening to this podcast but it cutout as Dr. Fox was discussing new treatment options. :-(
I have a son, I wanted to hike with him. But here I am losing every fight and still wanting to get back on the ring everyday.
Recent am fost diagnosticat și eu și am fost inițiat în program național să încep un tratament cu pastile timp de 2ani care trebuie să iau în fiecare zi o pastilă ,acesta este un tratament în fază de studiu adică nu se știe ce eficiență o să aibă dar acum am o problema cu analizele că zice că am hepatită activă și nu poate să inceapă tratamentu ,vreau să zic că cîte cazuri am văzut în spital este de groază atîta de tare ma afectat că sînt distrus total atîta de milă îmi este de colegii de suferință ,și nu prea am văzut pe cineva să se laude că a avansat spre bine ,din contră mai spre rău ,visavi de Medicu meu Neurolog nu am reproșuri pentru că știe meserie și este super sufletistă și dedicată meseriei pe care o face eu aștept să văd ce o să fie ,eu doresc multă sănătate la toată lumea de aici din ROMANIA.
After training myself to avoid inflammatory foods, sleeping and exercising regularly, my MS has been very manageable.
My mom has had it for 25 years. These last 5 have been hell. This is a family disease that affects everyone in the household. My mom can't do anything anymore, and now she's losing the ability to stand up with her walker, so it's getting scary for everyone. It's been really hard having to grow up watching my mom deteriorate right in front of me.
Prevod hrvatski
ربنا يشفس كل مريض يارب متقلقوش هتكونوا بخير ان شاء الله اطمنوا ربنا معانا كلنا...😢❤
Cc: Okay, so let's see what we've got: From the information as stated in 2023, the disease is being brought on by at least One Virus; Epstein Barr. Now, it appears, at least in my case, {another virus} Triggered the development of the more obvious symptoms we see as MS. Then, most of what ive seen since the late 90s, showed / shows the slowing down of the symptoms, but no effective treatment or cure; only the management of the decline. Outcomes from 97 - 17 amounted to therapies but no real reverse of the disease; why..? Answer: The inability to Manage Viruses. Seems my 1989 bout with Mono, and sudden diagnosis of MS in 2016, came about 4 Months after being given Oral Herpes by my girlfriend at the time. So: It does appear, One Virus; Epstein Barr causes the Fatigue, Lethargy, etc. The Other Virus; HS1, is causing my Optic Neuritis, as the girlfriend was experiencing Her own Neuritis and vision loss in her right eye as well. Was taking her to the doctor for it as I recall, come to think of it. Conclusions: So what I see taking place, is the body's attempt to rid itself of at least Two Viruses, that become endemic, fusing and blending into the body after many months and years, that to the body... ' it would appear that the body would / is attacking itself, quite correct. Answer: What we now need, is an approach or treatment, that Nullifies both Viruses, so the body no longer is forced to attack itself. Thank you. Peace. ❤
Okay, so let's see what we've got: From the information as stated in 2023, the disease is being brought on by at least One Virus; Epstein Barr. Now, it appears, at least in my case, {another virus} Triggered the development of the more obvious symptoms we see as MS. Then, most of what ive seen since the late 90s, showed / shows the slowing down of the symptoms, but no effective treatment or cure; only the management of the decline. Outcomes from 97 - 17 amounted to therapies but no real reverse of the disease; why..? Answer: The inability to Manage Viruses. Seems my 1989 bout with Mono, and sudden diagnosis of MS in 2016, came about 4 Months after being given Oral Herpes by my girlfriend at the time. So: It does appear, One Virus; Epstein Barr causes the Fatigue, Lethargy, etc. The Other Virus; HS1, is causing my Optic Neuritis, as the girlfriend was experiencing Her own Neuritis and vision loss in her right eye as well. Was taking her to the doctor for it as I recall, come to think of it. Conclusions: So what I see taking place, is the body's attempt to rid itself of at least Two Viruses, that become endemic, fusing and blending into the body after many months and years, that to the body... ' it would appear that the body would / is attacking itself, quite correct. Answer: What we now need, is an approach or treatment, that Nullifies both Viruses, so the body no longer is forced to attack itself. Thank you. Peace. ❤
Your honesty is appreciated
I also have primary progressive multiple sclerosis I was diagnosed 10 years ago, my neurologist back, then told me I would be bedbound or dead in 10 years. I’m still driving and cooking for myself, because I took my health into my own hands after he threw his hands up in the air and said there’s nothing more I can do for you, I said thank you and walked away and now I tell people this disease is a blessing, and a curse a curse, because it is so hard to even stand up a blessing because now I know how the human body works. I know exactly what I did to myself to come to this state, God bless anyone out who is suffering from any debilitating disease God bless you always calculate your next move and take it one day at a time. Happy holidays, everyone
Okay, so let's see what we've got: From the information as stated in 2023, the disease is being brought on by at least One Virus; Epstein Barr. Now, it appears, at least in my case, {another virus} Triggered the development of the more obvious symptoms we see as MS. Then, most of what ive seen since the late 90s, showed / shows the slowing down of the symptoms, but no effective treatment or cure; only the management of the decline. Outcomes from 97 - 17 amounted to therapies but no real reverse of the disease; why..? Answer: The inability to Manage Viruses. Seems my 1989 bout with Mono, and sudden diagnosis of MS in 2016, came about 4 Months after being given Oral Herpes by my girlfriend at the time. So: It does appear, One Virus; Epstein Barr causes the Fatigue, Lethargy, etc. The Other Virus; HS1, is causing my Optic Neuritis, as the girlfriend was experiencing Her own Neuritis and vision loss in her right eye as well. Was taking her to the doctor for it as I recall, come to think of it. Conclusions: So what I see taking place, is the body's attempt to rid itself of at least Two Viruses, that become endemic, fusing and blending into the body after many months and years, that to the body... ' it would appear that the body would / is attacking itself, quite correct. Answer: What we now need, is an approach or treatment, that Nullifies both Viruses, so the body no longer is forced to attack itself. Thank you. Peace. ❤
Can yo u elaborate on wh at you did to help yourself? I'm e xpecting a diagnosis at just 29 years old. I'm terrified.
What stands in the way is the treatment to slow the symptoms costs $87,000 twice a year. Why would pharmaceuticals want to create a cure and lose that income?
You are so right. I have ms for 7 years and have not touched ms drugs nor will I ever. Doing ok with diet and exercise
Thank you
My 53-year-old husband's PPMS (diagnosed in 2022) manifests itself in an incredibly extreme cognitive decline that I have not seen addressed anywhere in MS literature or research, including this webcast. He can no longer remember his age or address, cannot find his way around anywhere, or follow even basic instructions or perform simple household tasks. It is not the "cog fog" usually referred to in MS literature, but something like a combination of dementia, brain damage and learning difficulties. No strategy training can help him as he is blissfully unaware of his symptoms and feels fine. Is this presentation something the webcast participants have ever encountered and do they have any advice?
@shura-82 please consider having your husband evaluated at a university hospital by a neurologist and a neuro-psychologist for his cognitive decline and to get a second opinion 🙏🏼
@@redefiningmyself8598 He has been seen by a neuropsychologist twice, as well as by multiple neurologists.
turn loose AI and Crispr on this disease and see a cure in 12 months. We lack only the will.
Exactly. I am now seeing various medical professionals who seem to be making substantial progress on how to treat, slow, and halt the disease. Honestly, so tired of hearing ' we don't know. '
Soon no one will say i am in jehovah gods new world here on earth isiah 33:24 like in the garden of eden. This is a fact world conditions are deteriorating more crimes decaying morals eg. The acceptance of same sex marriage. Jehovah god acted in the time of Sodom and Gomorrah and he will act soon. Speak with one of Jehovah's witness to find out more❤
I Daniel McCoy M S .about a year ago I can still use all my limbs. I will begin to start trimming. I hope I found a cure.
Thank you! I wanted to ask about GAIT. I have this and unfortunately there is no medicine from what I understand from my neurologist. Is this true?
Ampyra has helped me …. I think. I noticed my gait is worse without it. I’m grateful for whatever is being done but it’s very discouraging for me to listen to the first thing the man says is they don’t know what’s going on or what’s wrong so they couldn’t possibly know how to begin to treat or fix it I’ve lived with MS for over 20 years, but possibly more like 35 It just became undeniable after the birth of my first child more than 20 years ago
I am a MS patient with RRMS, Dr Shanthi is my neurologist doctor. She is a very great and amazing doctor. Personally I like her so much. I will listen to her advice and be brave facing my MS disease.. #May God Bless Doctor Shanthi Stay Healthy.
RUclips only has a thumbs up to represent that you appreciate or like the video. In a case like this I wish it was more like Facebook that had a sadness emoji.
We hope that the statistics of patients with MS in Yemen will be included in the Atlas programme
❤❤❤
Diagnosed 27 years ago and the past 5 years have been THE most challenging. It's a cruel disease.
Yup, I'm 17 years in and it's now active secondary progressive MS. Stay strong 🙏🏼
I was so lucky to get rid of my Multiple Sclerosis (MS) after using DR ALAHO OLU on RUclips herbal supplements for three weeks. He has medicine for HPV, HSV, ALS and MND…..
Thank you, Joanna, for your comment about the importance of providing medications
Rameshasalisexkannaba
Es lo peor del mundo y todos dicen que es pereza y no entienden que cuando te da no eres capaz de dar dos pasos seguidos 😅😢
This disease stinks, never thought I would be diagnosed at 68. It’s changed my life was a runner, outdoor person & a dancer. My prayers go out to all who have MS 🙏
How are you doing ?
I was diagnosed in Oct 2022 at 69. What a surprise
@@evekrawczyk633 I know what u a dealing with, stay strong ❤️
My 41 yr old daughter just got diagnosed with progressive MS 😢😢😢 it’s very depressing to not being able to do anything to help her , I pray constantly for her and try to just be here but she doesn’t contact me much 😢only by texts even though she lives only an hour away 😢😢 she doesn’t like anyone to visit 😢😢 if you could give me any insight to what I could possibly do to help her ….. please tell me 🙏🙏🙏
You can do something. I know from experience
keep praying, she is may depressed coz of it, advice her to eat more greeny dark vegetables, eat more fish salmon, sardine, try to go out in sun and walk and take off course vitamin D daily along with vitamin K to absorb it, also omiga 3 pills, try to be happy it helps a lot, and a lot said Lion's mane mushroom pills help. and manuka honey..just be positive with her, share successful stories together.. it may help.. lets pray for each other every day.. God is great ❤❤👋🌷
If you have money try HSCT in mexico or russia my wife was diagnosed with ms six months ago we haven’t done it yet cuz of financial issiues but ill do it for her if it means ill sell my kidney
No please not sell your kidney
@@koko_7yes she may very well be depressed! Keep praying, I will join with you in prayer for her🙏🙏❤️
Yes how are you doing? We are in the same boat.🙁